Saturday, May 14, 2011

Mayo Clinic Trip - Summary

Here is a summary post of my time at Mayo Clinic.  I didn't end up posting about my appointments on Thursday and Friday, so I'll simply include those in here.  (Honestly, I'm kind of sick about posting about doctors and illness so this might be short - of course feel free to ask questions if I didn't answer something).

Friday provided a lot of answers and we were so happy!  We found out that I had correctly self diagnosed myself with an extremely, extremely rare illness.  It's not really a happy diagnosis, but there is something wonderful about finally having a name.  There is peace in having a name.

Overall we were very pleased with this trip to Mayo (our second trip).  It was an exhausting six days and we are still recovering, but it was worth it.  We received a lot of quality information for managing my primary illness as well as got medicine to help with my migraines.  And finally, we got an official diagnosis from an expert in a very, very rare illness.

We worked to maintain eyes for beauty and to express gratitude each day.  At times, Mayo seems so hopeless as there are suffering people all over the place.  It is easy to get fixated on getting well and on finding relief.  Yet I am reminded that more than needing a Healer for my body, I need a Healer for my heart.

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