Tuesday, November 29, 2011

raising awareness


My case isn't this advanced yet.  I don't really have eloquent words to add to this, so just watch the video.

**added note:  there is nothing worse than having this illness and having no one believe you (not even your doctors).  because of its rarity, there are still a number of doctors who have never heard of this and they treat you like a complete idiot when you try and explain this.  when i finally did get diagnosed, the doctor congratulated me on self-diagnosing (which was the exact same thing that the other doctors had scorned).  keep fighting.  find a doctor who will listen.

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